ABSTRACT
BACKGROUND: We conducted this study to investigate the financial burden of terminal cancer patient's family and to identify factors influencing their economic burden. METHODS: We approached 187 family members supporting their famly member with terminal cancer who was enrolled in four hospice and palliative care program. We constructed a questionnaire examining the impact of illness on their family. With multiple logistic analysis, we examined the patients' and family members' demographic and the patients' clinical factors associated with the burden caused by terminal cancer. RESULTS: The majority of families reported the loss of savings (54%), the need to make major life changes in order to care for the patient (50%), the loss of incomes (34%), the inability to function normally because of the stress of the illness (27%). Many families had to move to a less expensive home (18%), delay medical care for other family members (12%), or change educational plans for other family members (13%). Families that cared for patients who wanted to be cared for at institution (odds ratio: 2.72, 95% confidential interval: 1.19~6.19), patients with liver cancer (3.61, 1.53~8.57), and families who were poor caregivers (2.97, 1.24~7.10), or primary caregiver was a spouse (3.57, 1.47~8.68) were more likely to lose savings. Families that were in 'new couple' in family life cycle stages (3.91, 1.04~14.63), 'birth of the first child' (8.34, 2.74~25.32), and 'the adolescent family or the launching family' (10.56, 4.07~27.33), were more likely to lose savings than 'the empty family or the aging family'. CONCLUSION: Many families reported severe caregiving and economic burdens. Social and financial support need to be given to families with predictors of high economic burdens.